Life to be lived : challenges and choices for patients and carers in life-threatening illnesses /
'Life To Be Lived' examines the process of adjustment that patients and their families go through when they face the end of life. Personal research and case-based examples provide a candid look at the challenges from dealing with options from symptom and pain control to adjusting to the ps...
| Main Authors: | , |
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| Format: | eBook |
| Language: | English |
| Published: |
Oxford :
Oxford University Press,
2014.
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| Subjects: | |
| Online Access: | Connect to the full text of this electronic book |
Table of Contents:
- Cover; Title Page; Copyright Page; Foreword; Preface; Acknowledgements; Introduction; Contents; Part 1 The patient experience; 1 The challenge of illness and pain; Help me to live, not to stop dying; Pain; Curing and healing; Stress provoked by treatments; Psychological needs in treatment; 2 All may not be lost; Valuing patients as people; Some personal sources of strength; Absorbing interests; Relationship and communication; Supportive and/or challenging characteristics; 3 Trials and adjustment; Inner turmoil; A cancer journey?; Longing for normality and yearning for safety
- A network of support4 Towards a changed outlook; The part of life one has not lived; Discovering meaning; A sense of achievement; Recognising one's identity and status; Part 2 The impact on family carers; 5 Demands on the family; Diagnosis and its demands; Logistics; Finance; Teamwork; 6 Lives taken over; Changing experience of time; Priorities and decision making; The reality of unpredictability; 7 Coping with change; Denial and overprotection; Interdependence and mutual impact; Facing a new future; 8 Some personal consequences for the carer; Fatigue and self-neglect; Guilt; Loss; Rewards
- Part 3 The professional carers and their roles9 Challenges for the professional carer; Patient-centred care; Finding a common language; Creating and holding a safe space; Flexibility in approach and response; Coping with a backlog of grief; Taking care of themselves; 10 The power and limitations of words; Beyond words ... metaphor and symbol; The metaphorical language of rituals; Beyond communication, encounter; 11 Talking with patients; Breaking bad news; Sharing information; Helping people to be heard; Talking about illness in the family; 12 Chaplaincy and spiritual care
- The role of the chaplainCaution not to impose; Spiritual care as giving meaning; Regrets and reparation; Needs, spiritual and/or religious; Overlap of roles; Death and dying; Part 4 Boundaries and resources; 13 Blurred boundaries; Expectations and projections; Shared responsibility; Individual and institution; Information and self-disclosure; The challenge of visiting the dying; 14 A wealth of resources; From being the subject of suffering to an observer of pain; Professional and peer support; Hands-on involvement; Ways to express feelings and find new meaning; Intimacy; Acceptance
- Part 5 The next step15 The next step?; The last great adventure; Grief and bereavement; In conclusion; Postscript; Index