A rare disease patient registry /

Michael Hund, CEO of Epidermolysis Bullosa Research Partnership (EBRP), had arrived at a fork in the road. He faced a decision on the structure of an entity he had created with help from a cloud computing industry leader for a database of health information about Americans struggling with epidermoly...

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Bibliographic Details
Main Authors:	Elias, Jaan (Author), Kinkead, Gwen, 1951- (Author), Licholai, Greg (Author)
Format:	eBook
Language:	English
Published:	London : Yale School of Management, 2021.
Series:	SAGE Business cases.
Subjects:	Nonprofit organizations > Case studies. Health facilities, Proprietary > Case studies. Associations sans but lucratif > Études de cas. Équipements sanitaires privés > Études de cas. Health facilities, Proprietary. Nonprofit organizations. Electronic books. Case studies.
Online Access:	Connect to the full text of this electronic book

Description
Summary:	Michael Hund, CEO of Epidermolysis Bullosa Research Partnership (EBRP), had arrived at a fork in the road. He faced a decision on the structure of an entity he had created with help from a cloud computing industry leader for a database of health information about Americans struggling with epidermolysis bullosa (EB). Should he spin out the new entity from EBRP into a for-profit venture? He had offers from venture capitalists and investors to capitalize a for-profit company. Or should he stay with the tried-and-true model for medical charities and establish a non-profit to hold the database? Both options offered opportunities and challenges.
Item Description:	Originally Published InElias, J., Kinkead, G., & Licholai, G. (2021). A Rare Disease Patient Registry. 20-035. New Haven, CT: Yale School of Management, Yale University.
Physical Description:	1 online resource.
ISBN:	9781529796988 1529796989