A pilot study to evaluate cross-sectional and longitudinal supplemental data collection on medical and nonmedical costs of muscular dystrophy /

This case study describes the design and implementation of a small-scale, or pilot, study for collecting cross-sectional and longitudinal supplemental data on medical and nonmedical costs associated with selected muscular dystrophies. We recruited individuals with a confirmed diagnosis of Duchenne a...

Full description

Bibliographic Details
Main Authors:	Conway, Kristin M. (Author), Neyaz, Tahereh (Author), Romitti, Paul A. (Author)
Format:	eBook
Language:	English
Published:	London : SAGE Publications Ltd., 2020.
Series:	SAGE Research Methods Cases : Medicine and Health.
Subjects:	Muscular dystrophy > Case studies. Medical fees > Case studies. Médecins > Honoraires > Études de cas. Medical fees Muscular dystrophy Case studies
Online Access:	Connect to the full text of this electronic book

Description
Summary:	This case study describes the design and implementation of a small-scale, or pilot, study for collecting cross-sectional and longitudinal supplemental data on medical and nonmedical costs associated with selected muscular dystrophies. We recruited individuals with a confirmed diagnosis of Duchenne and Becker or myotonic muscular dystrophies identified by the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. We later analyzed our pilot study approach for the purpose of identifying successful components for future large-scale data collection. Readers are expected to learn about the challenges of designing and implementing a pilot study. Our evaluation included recruitment success, cross-sectional versus longitudinal data collection, and response patterns.
Physical Description:	1 online resource.
Bibliography:	Includes bibliographical references and index.
ISBN:	9781529742671 1529742676