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Reflections on the ethics of co-research alongside people living with dementia : a co-operative inquiry /

This case study is based on a co-operative inquiry project titled "The Changing Face of our Neighborhoods," which is a suite of three cultural heritage films co-produced alongside the Open Doors Research Group in Salford, Greater Manchester, UK (see: https://salfordneighbourhoods.wordpress...

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Bibliographic Details
Main Authors: Swarbrick, Caroline (Author), Riley, Cathy, active 2020 (Author), Khetani, Beena (Author), Keady, John, 1961- (Author)
Format: eBook
Language:English
Published: London : SAGE Publications Ltd, 2020.
Series:SAGE Research Methods Cases: Medicine and Health.
Subjects:
Open Doors Research Group > Case studies.
Participant observation > Case studies.
Dementia > Research > Moral and ethical aspects > Case studies.
Démence > Recherche > Aspect moral > Études de cas.
Participant observation.
Case studies.
Online Access:Connect to the full text of this electronic book
Description
Summary:This case study is based on a co-operative inquiry project titled "The Changing Face of our Neighborhoods," which is a suite of three cultural heritage films co-produced alongside the Open Doors Research Group in Salford, Greater Manchester, UK (see: https://salfordneighbourhoods.wordpress.com/films/). The Open Doors Research Group operated as a sub-group of the Open Doors Dementia Service, which is a peer support group for people living with dementia and their care partners and has been supported by Greater Manchester Mental Health NHS Foundation Trust over the last decade. Co-operative inquiry is part of the participatory research paradigm and is an under-reported and novel approach in the field of dementia research. We worked alongside people living with dementia (with and without capacity) as co-researchers in a collaborative and shared decision-making enterprise. Implementing co-operative inquiry alongside people living with dementia presented a number of challenges for co-researchers and academic researchers alike, and in this case, we will share our reflections on some of the main ethical dimensions and shared decision-making processes that were faced over the continuum of the study.
Physical Description:1 online resource.
Bibliography:Includes bibliographical references and index.
ISBN:9781529709209
1529709202