Exploring parents' experiences of living with a child with a long-term condition : methodological challenges when interviewing couples /

My doctoral thesis explored how parents manage their childs long-term condition in the context of children with hydrocephalus, a neurological condition where there is excessive fluid within the brain. More specifically I focused on parents experiences of living with a child with hydrocephalus and th...

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Bibliographic Details
Main Author: Smith, Joanna, 1963- (Author)
Format: eBook
Language:English
Published: [Place of publication not identified] Sage Publications Ltd, 2017.
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Online Access:Connect to the full text of this electronic book
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Summary:My doctoral thesis explored how parents manage their childs long-term condition in the context of children with hydrocephalus, a neurological condition where there is excessive fluid within the brain. More specifically I focused on parents experiences of living with a child with hydrocephalus and the ways in which health professionals involve parents in care and care decisions. Two exploratory studies were undertaken using interview and observational methods to elicit data. Subsequently, I have supervised several doctoral students who have undertaken research with families. One of the recurring challenges when undertaking research in the context of the family relates to whether data collection, and more specifically interviews, should be undertaken with individual family members, couples together, or multi-family members and whether to analyze data sets separately or together. Although there is a wealth of literature relating to the underpinning epistemology of the individual interview and the focus group, and guidance on these data collection methods, there is a paucity of literature within health and social science disciplines relating to interviewing couples simultaneously. This case study provides an account of the ethical and methodological challenges when interviewing a couple together by drawing on examples from my PhD.
Item Description:Title from content provider.
Physical Description:1 online resource
ISBN:9781473974753
1473974755