rdf-syntax-grammar
mods:
  schema location: http://www.loc.gov/mods/v3 http://www.loc.gov/standards/mods/v3/mods-3-2.xsd
  title info:
    title: Vulnerability Revisited
    sub title: Leaving No One Behind in Research
  name:
    name part: Schroeder, Doris.
    role:
      role term: creator
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Chatfield, Kate.
    role:
      role term: author.
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      role term: aut
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      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Chennells, Roger.
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Partington, Hazel.
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Kimani, Joshua.
    role:
      role term: author.
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      role term: aut
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      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Thomson, Gillian.
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Odhiambo, Joyce Adhiambo.
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Snyders, Leana.
    role:
      role term: author.
    role:
      role term: aut
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      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: Louw, Collin.
    role:
      role term: author.
    role:
      role term: aut
    role:
      role term: http://id.loc.gov/vocabulary/relators/aut
  name:
    name part: SpringerLink (Online service)
  type of resource: text
  genre: Electronic books.
  origin info:
    place:
      place term: sz
    date issued: 2024
    edition: 1st ed. 2024.
    issuance: monographic
  language:
    language term: eng
  physical description:
    reformatting quality: access
    form: remote
    extent: 1 online resource (XIX, 145 pages 18 illustrations, 12 illustrations in color.)
  abstract: Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term 'vulnerability' was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term 'vulnerability' know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility .
  table of contents: Chapter 1. Leaving no-one behind in Research - The Introduction -- Chapter 2. Exclusion of Vulnerable Populations from Research? -- Chapter 3. Exclusion from Research - the complex dynamics around two vulnerable communities' experiences of participation, inclusion, and exclusion in research -- Chapter 4. Vulnerability lost in translation? -- Chapter 5. Research without obtaining personal data for research purposes -- Chapter 6. Strengthening research teams through community researchers -- Chapter 7. Leaving no-one behind in Research - Recommendations for the Way Forward -- Book Backmatter.
  note: by Doris Schroeder, Kate Chatfield, Roger Chennells, Hazel Partington, Joshua Kimani, Gillian Thomson, Joyce Adhiambo Odhiambo, Leana Snyders, Collin Louw.
  note: Open Access
  subject:
    topic: Science
    topic: Moral and ethical aspects
  subject:
    topic: Medical Ethics
  subject:
    topic: Sustainability
  subject:
    topic: Medical care
  subject:
    topic: Science Ethics
  subject:
    topic: Medical Ethics
  subject:
    topic: Sustainability
  subject:
    topic: Health Care
  classification: Q175.35-.37
  classification: 174.95
  related item:
    title info:
      title: Springer Nature eBook
  related item:
    title info:
      title: SpringerBriefs in Research and Innovation Governance
  identifier: 9783031578960
  identifier: https://doi.org/10.1007/978-3-031-57896-0
  access condition: Open Access
  record info:
    record creation date: 240501
    record change date: 20240731183148.7
    record identifier: in00004802946