Table of Contents:
  • Introduction to the family
  • Background to the study on children with SCID and their families
  • Severe combined immunodeficiency, a brief overview
  • Effects of early hospitalisation on children
  • The effects of isolation and bone marrow transplantation on the child and family
  • Children's perceptions of illness and death
  • Stressors and coping mechanisms
  • Psychosocial effects on the children
  • Anger, aggression, and antisocial behaviour in children
  • Neurotic and depressive behaviour in children
  • Psychosocial effects on the family
  • Attachment and alienation
  • Post-traumatic stress disorder and children
  • Post-traumatic stress disorder in families.