http://www.loc.gov/mods/v3 http://www.loc.gov/standards/mods/v3/mods-3-2.xsd
leprosy, stigma, and the fight for justice
x, 348 pages, 8 unnumbered pages of plates : illustrations ; 24 cm.
The unknown story of the only leprosy colony in the continental United States, and the thousands of Americans who were exiled, hidden away with their "shameful" disease. Between Baton Rouge and New Orleans, the Mississippi River curls around an old plantation thick with trees, with a stately white manor house at its heart. Locals knew it as Carville, the site of the only leprosarium in the continental United States from 1894 until 1999, where generations of afflicted Americans were isolated, often until death. While experts today know that leprosy is not nearly as contagious as once feared, there remains a virulent stigma around those who suffer from it. Pam Fessler tells the story of Carville's patients against the backdrop of America's slowly shifting attitudes toward those cast aside as "others." She also reveals how patients rallied together with an unlikely team of nuns, researchers and doctors to find a cure for the disease, and to fight the insidious stigma that surrounded it. With original interviews and newly discovered archival material, Fessler presents an essential history of one of America's most shameful secrets.
Prologue -- Exile -- God versus germs -- Rescue mission -- Rebellion -- "What have I got, doctor-- leprosy?" -- Finding a home -- Ripped apart -- "Nun nurses" -- Jail within a jail -- The hole in the fence -- Search for a cure -- Until leprosy do us part -- The miracle -- Fighting for freedom -- Not bright enough -- "It's Tallulah, darling" -- Human touch -- An era ends -- Discrimination -- Shutting down -- Lessons not learned -- Epilogue.
Includes bibliographical references and index.
United States Marine Hospital No. 66 (Carville, La.)
Public Health Service Hospital at Carville, La.
Gillis W. Long Hansen's Disease Center (U.S.)