El mal /
Barranquitas is a fishing village on the shore of Lake Maracaibo, in the state of Zulia in Venezuela. Many of its streets are unpaved, the houses lack plumbing facilities and sewage runs in the open gutters. In addition to this alarming poverty, the villagers have suffered for more than one hundred...
| Other Authors: | |
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| Format: | Book |
| Language: | Spanish English |
| Language Notes: | Text in Spanish and English. |
| Published: |
Barcelona, España : México, D.F., México :
RM Verlag, S.L. : Editorial RM, S.A. de C.V.,
[2017]
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| Edition: | Primera edición. |
| Subjects: |
| Summary: | Barranquitas is a fishing village on the shore of Lake Maracaibo, in the state of Zulia in Venezuela. Many of its streets are unpaved, the houses lack plumbing facilities and sewage runs in the open gutters. In addition to this alarming poverty, the villagers have suffered for more than one hundred years from a particular genetic disorder. Barranquitas is a major focus of Huntington's Disease (popularly associated with the condition of Saint Vitus Dance, el Mal de San Vito in Spanish), a rare, hereditary, neurodegenerative disorder, for which there is no cure. 'El Mal' is a photographic essay about the ravages of this terrible disease in Barranquitas. The stories in the essay show people's struggles with the condition and their will to live, in spite of the end to which they are condemned, in a hostile environment, without proper food or medicine, in the midst of appalling poverty. |
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| Item Description: | Cover title. |
| Physical Description: | 1 volume (unpaged) : color illustrations ; 28 cm. |
| ISBN: | 9788416282807 8416282803 9786078295357 6078295357 |