The New Genetics: From Research into Health Care : Social and Ethical Implications for Users and Providers /
The ultimate goals of human genome research are the treatment, cure and eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased suceptibility to disease. Most genetic services today deliver diagnosis and counseling, effective treatment is...
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| Format: | eBook |
| Language: | English |
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Berlin, Heidelberg :
Springer Berlin Heidelberg : Imprint : Springer,
1999.
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| Online Access: | Connect to the full text of this electronic book |
| Summary: | The ultimate goals of human genome research are the treatment, cure and eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased suceptibility to disease. Most genetic services today deliver diagnosis and counseling, effective treatment is rare. As more genes are identified there is growing pressure to implement new testing programs or broaden existing programs and otherwise increase both the number of available genetic tests and the amount of genetic information. The main issues concerned among others are: voluntariness of services, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, privacy, testing of minors, social discrimination and stigmatization. |
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| Item Description: | Electronic resource. |
| Physical Description: | 1 online resource (X, 169 pages 13 illustrations) |
| ISBN: | 9783642584862 (electronic bk.) 3642584861 (electronic bk.) |