http://www.loc.gov/mods/v3 http://www.loc.gov/standards/mods/v3/mods-3-2.xsd
1 online resource (viii, 309 pages :) : illustrations
Introduction : patients as policy actors / Nancy Tomes and Beatrix Hoffman -- Solitary advocates : the severely brain injured and their surrogates / Joseph Fins and Jennifer Hersh -- Physician-patient communication in the care of vulnerable populations : the patient's voice in interpersonal policy / M. Robin DiMatteo ... [et al.] -- Is it time to push yet? The challenges to advocacy in American childbirth / Elizabeth Mitchell Armstrong and Eugene DeClercq -- A pound of flesh : patient legal action for human research protections in the biotech age / Lori Andrews and Julie Burger -- From outsiders to insiders : the consumer/survivor movement and -- Its impact on American mental health policy / Nancy Tomes -- "Don't scream alone" : the health care activism of poor Americans in the 1970s / Beatrix Hoffman -- The canary in Gemeinschaft : using the public voice of patients to enhance health system performance / Mark Schlesinger -- Patient appeals as policy disputes : individual and collective action in managed care / Marc Rodwin -- The power of us : a new approach to advocacy for rare cancers / Amy Dockser Marcus -- Patients and the rise of the nurse practitioner profession / Julie Fairman -- A house on fire : newborn screening, parents' advocacy, and the discourse of urgency / Rachel Grob -- Measuring success : scientific, institutional, and cultural effects of patient advocacy / Steven Epstein.
Includes bibliographical references and index.